Ella Jewell was born on September 2, 2009, and shortly after diagnosed with Severe Congenital Neutropenia. As her parents, we were deeply saddened by her diagnosis. Although it is not always easy, we do all that we can to stay positive. In 2010 we formed the Ella Jewell Foundation, not only to benefit Ella but all families affected by Neutropenia. Sometimes it is difficult for others to understand the severity of the disease because when you look at a child with Neutropenia they " look" perfectly healthy and each of them have a beautiful sparkle. Currently, there is only one medication available to treat Neutropenia and it is not meant for everyday use. In order to keep helping others and to keep our family happy, positive and full of life. We need to assure that Ella will not ever become devastatingly ill, we want additional treatment options and a cure. Please support us in our mission. It gives us and many other families a great amount of hope.